SUPPORT GROUPS
National
Institute of Neurological Disorders and Stroke
The National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
National
Tay-Sachs and Allied Diseases Association
2001 Beacon Street
Suite 204
Brookline MA 02146
NTSAD-boston@worldnet.att.net
Tel: 617-277-4463 800-90-NTSAD (906-8723)
Fax: 617-277-0134
Association
for Neuro-Metabolic Disorders
c/o Cheryl Volk
5223 Brookfield Lane
Sylvania OH 43560
VOLK4OLKS@aol.com
Tel: 419-885-1497
National
Organization for Rare Disorders (NORD)
P.O. Box 8923
(100 Route 37)
Fairfield CT 06812-8923
orphan@rarediseases.org
Tel: 203-746-6518 800-999-NORD (-6673)
Fax: 203-746-6481
Morbus
Fabry Patients' Organization
Prof. Dr. med. M. Beck
Universitôtskinderklinik
Langenbeckstr.1
55131 Mainz
dr.Beck@fabry-selbsthilfegruppe.de
This organization is based in Germany
Fabry Support
& Information Group
108 NE 2nd Street, Suite C
Concordia, MO 64020
jack@fabry.org
Tel: 660-463-1355
Fax : 660-463-1356
Return to top
|
